Duchenne is a progressive, genetic and degenerative disease. Without a treatment, Duchenne children will die in their second or third decade of life.
It is possible to change the course of the disease and save the children. You can help and be part of the desired change
Duchenne is a progressive, genetic and degenerative disease. Without a treatment, Duchenne children will die in their second or third decade of life.
It is possible to change the course of the disease and save the children. You can help and be part of the desired change
Duchenne is a genetic and progressive muscle disease. It is the most common disease of degenerative muscle illness. Due to a genetic defect, the body does not produce an essential protein called dystrophin. Without this protein, the muscles in the children’s body are rotated daily. At present, there is no cure for DMD.
We, the parents of DMD boys, have established and managed the A.D.I. organization, in order to improve the medical treatment given to our children, and to find a cure for the disease.
Our journey is not simple and the scientific challenge is enormous. Nevertheless, the source of the disease is known and the task is possible! We, as parents to DMD boys, parents have the biggest interest to win the disease. With your assistance we will be able to put an end to Duchenne.
Our children are heroes. They deal with the disease every day with admirable determination. Every simple day-to-day action requires a huge effort. For them, to get into the car, climb stairs, play with a friend in the yard – are actually extreme tasks. Every child has a world of values, hobbies, desires and dreams. Our children climb Mount Everest with determination and success each day anew to fulfill themselves.
Our vision is to live in a better world where children will no longer die of Duchenne. In order to achieve it, our activities are focused on promoting research and development of new treatments – aiming at putting an end to the disease in the foreseeable future. When we had established the organization in 2011, there was no Duchenne study in Israel. Nevertheless, where there’s a will there’s a way. Projects that we have initiated are leading the progression of Israeli research. Promoting cooperation and information sharing, as well as improving medical care, are significantly advancing. There is hope that the day will not be long, before our vision will come true.
The origin of Duchenne is known to researchers. A minor defect in the gene prevents the production of an essential protein – dystrophin. There are various mutations to the disease, i.e. the defect in each patient can be in another form or letter in the gene…
A genetic defect creates a deficiency in the production of the dystrophin protein. In the absence of protein, the muscles in the kids’ body are exposed, and they are rotting every day with every simple action.
It is known that maintaining a high standard of treatment, tailored to each patient according to his condition, can delay the development of the disease. From the stage of diagnosis, regardless of the patient’s age, it is crucial to…
מחלת הדושן היא מחלת ניוון שרירים גנטית, הנפוצה ביותר מבין מחלות השריר הניווניות. ללא תרופה, ילדי הדושן ימצאו את מותם כתוצאה מכשל שרירי הלב או הריאות.
מחלת הדושן היא מחלת ניוון שרירים גנטית, הנפוצה ביותר מבין מחלות השריר הניווניות. ללא תרופה, ילדי הדושן ימצאו
מחלת הדושן היא מחלת ניוון שרירים גנטית, הנפוצה ביותר מבין מחלות השריר הניווניות. ללא תרופה, ילדי הדושן ימצאו
אנחנו לא נחים לרגע. כל כך הרבה דברים מתרחשים כל הזמן. בואו ותתרגשו יחד אתנו מקטעי תקשורת, חדשות ועדכונים מאירועים ומחקרים בעולם הדושן. אנחנו יודעים שגם צעד אחד קטן בדרך – מקדם אותנו בביטחון אל המטרה.
You can also donate in the following ways:
מחלת הדושן היא מחלת ניוון שרירים גנטית, הנפוצה ביותר מבין מחלות השריר הניווניות. ללא תרופה, ילדי הדושן ימצאו את מותם כתוצאה מכשל שרירי הלב או הריאות.
